Saturday, January 14, 2012

Joining the Cult of Thinness

The Cult of Thinness is a book by Sharlene Nagy Hesse-Biber. Her credentials are top notch; she is both a professor of sociology at Boston College and a woman who was asked to investigate why so many college-aged females were brought in to the college health center for eating disorders. Through intense research, personal interviews, and her own brilliant insights, Professor Hesse-Biber wound up writing a series of books on women's weight issues, books which delve into deeper topics such as women's rights and roles in American society.

As a Chicana (Chicana=Mexican female born in the US), one might think I would have some insulation to the peer pressures to be thin that plagues so many Caucasian females. However, I was raised in California with copies of Cosmo, Vogue, and 17 magazine just like everyone else and the effects were on par as my Caucasian counter-parts. No, I couldn't ever be pale-skinned and blonde, but being thin was the one thing I could be. Wanting to fit in with my classmates, who were predominately Caucasian, I picked at my food, dieted whenever I didn't fit into size 5 anymore in order to get back to size 5, and I never went over 115 until my mid-20's

 I was thoughtlessly thin until around age 23 or 24 when Zyprexa, the anti-psychotic drug (I became schizo-affective in my 20's), cause me to gain upwards of 60-70 pounds. This isn't unheard of as one of my psychiatrists commented that he'd had a patient who'd rapidly gained 100 pounds as soon as he was put on Zyprexa. As soon as I was 25, when most people are graduating from college, getting real jobs, and maybe even getting married,  my life dissolved into one of regimented pill-taking, intense psychological scrutiny, the inability to complete college due to psychiatric disability, and the part I dreaded most: living as a fat person. If society had treated me differently I wouldn't have minded the fat as much as I did, but I was publicly ridiculed for being 180 pounds on a 5' 1" -5'2" build.

At age 26 (or 25, I forget) I fasted myself back to 135 pounds. Nowhere near my skinniest weight, I was miserably. Shortly thereafter, the effects of an untreated metal illness kicked in and I was soon being poked, prodded, and scrutinized inside a psychiatric hospital where the familiar faces of the mental health staff were shocked to see how much weight I'd lost. I couldn't understand why they were so adamant that I eat 3 meals a day: couldn't they see that the weight gain was worse than the mental illness? No, they did not see that the weight gain was worse and instead they dutifully forced me to drink milk and eat at least half of all my meals. Combined with my new medications and the accompanying side effects, I gained all the weight back, plus about 10 pounds.

Then, I yo-yo'd from a size 14 to a size 16, back to a size 14, and back to a size 16 before I got my life together and was admitted to the University.

Happy ending, right? Ex-EDNOS female now a size 14 (162-164 pounds), getting exercise, going to University, taking proper medication for mental illness, all goes well, right?

If that were true I probably wouldn't gravitate towards books on self-image. For that matter, I wouldn't be writing graphic tales of my mental illness and personal life experiences on the internet for anybody to read!

Reading The Cult of Thinness made me realize how zany it was to believe that being fat was worse than being insane. The sad thing is, according to the book, this belief is perfectly normal in our society. Dieting is like a rite of passage. Mexicans have quinceneras, where 15 year olds dress up like brides and take Catholic vows, Americans have weigh-ins, not to see if you're healthy or not, but to determine just how much weight you must lose to be acceptable to society.

I say all this like I'm going to jump off the band-wagon, but shirking this sort of social media brainwashing isn't that easy. If anything, I have to re-take my vow of dieting. I feel like I got married to this idea of thinness at age 13, cheated on Thin by getting fat in my mid-twenties, and am only now making amends by eating a zucchini for lunch. Just like in the Catholic faith, there is no divorce once you join the Cult of Thinness.

To those of you who are ready to get a divorce, read this book! It has amazing insights into how women focus on their appearance to avoid focusing on glass ceilings, wage discrimination, war, and other horrors of modern life.

The Cult of Thinness Book for sale on amazon dot com

Tuesday, January 10, 2012

Maybe it's the pot of coffee I just had but I feel happy.

I'm about to start a new semester at the University, this time taking Chinese 1B and Arabic 1B, several linguistics classes, and a dance class. I am looking forward to working on hitting my Mandarin tones properly.

I went by campus to pick up my textbooks. The department of rehabilitation is sponsoring me through my education now, so they paid for the cost of my books. DOR (department of rehab) works with disabled people in trying to get the physically and mentally disabled people into jobs. I actually just wanted a part-time job to help me get by as I went through my last year of college, but my DOR counselor said they could sponsor my time at the University and help me with work afterward. So now I don't work but I do carry a full load every semester in terms of units. I get a meager sum of grant money that I get to keep each semester, something I am still learning to budget in order to save money for the possibility of graduate school.

Without DOR I think I would feel less pressure to succeed in school. I need this pressure, as it helps me study harder and for longer periods of time. I feel like I need to prove my worth to the department, so I work harder. Despite the irritation I experience whenever I have to sit still for longer than 20 minutes, I enjoy studying. It makes me feel like I'm exercising my brain and that I'm being productive to society by learning new languages.

Despite a painful semester that included the death of my grandfather, the closest thing I've ever had to a father, I still got by my semester with a 3.0 GPA. While this was not my best semester, I passed and it's over with and I can focus on a new term. My cumulative GPA is still enough to get me into the graduate program at my University and I am looking forward to the challenge of graduate school.

What I'm not looking forward to is asking for letters of recommendation. For anybody, asking a professor for a letter of recommendation can be daunting. For myself, being the nervous, self-doubting schizo-affective person I am, this is proving to be a very high hurdle. I struggle with feeling equal to others. Though I have written extensively about how schizophrenics are equal to everybody else, in my daily life I am plagued by anxiety about how I am perceived by others. As I have had breaks from reality in the past, I have become habituated to using the reactions of people around me to judge how well I am doing in my cognition and behavior. I have become highly sensitive to the slightest upturned nose or the smallest frown because these have previously been signals I used to indicate that my own speech or facial expressions were causing discomfort in the people around me. What at one point was a means of self-monitoring is now a habit I have. I used to have to watch my speech for word salads (word salad = a nonsensical combination of words that schizophrenics tend to produce while floridly psychotic), inappropriate paranoid statements, and random giggling fits. Now, I watch my speech to make sure I conform to the social situation and to make sure I don't disclose to much about myself. I can be quite obsessive about self-monitoring.

While self-monitoring is a good way to ward off symptoms and to re-integrate myself back into society, it is also very easy to become highly self-critical. I always think I've said something horribly wrong or inappropriate when there's no reason to believe this. For example, sometimes I get excited about a subject and I go up to the professor after class to ask a question about a topic. Then, realizing I've just put myself on center stage with a highly intelligent expert in his field, I get nervous, start fiddling with my clothes, stuttering all the while, and I usually end up leaving feeling like a fool, or worse, like a charlatan pretending to be sane when everybody else knows I'm nuts. This is what is called transparency. I feel like I am transparent; that my entire identity is visible to others. It's common in schizophrenics. Even if a professor does suspect I'm mentally ill, the law states that s/he is not allowed to discriminate against me due to biological conditions. Still, this fact doesn't stop me from feeling like an idiot on occasion.

Being highly sensitive to my social and academic mistakes makes me wonder if anybody would vouch for me at all! Of course, linguistics isn't rocket science or brain surgery---nobody's life hangs in the balance, but I still doubt myself and my reputation in academia enough to make asking a professor for a letter of recommendation a looming tidal wave of dread and anxiety.

But it must be done. Wish me luck!
Thanks for reading.

Friday, January 6, 2012

At Times Obtuse At Times Hypersensitive

Like the title says, I am at times obtuse and at other times hypersensitive. Being schizophrenic is a cognitive disorder and it affects my social awareness. It is one of the embarrassing aspects of the disease, this social clumsiness I experience. There is fear, constant fear. There is panic on occasion. There is confusion a lot of the times, but often one part of my disease is inconsistant. My social awareness is skewed in one direction or the other, sometimes shifting in a single day.

At times I miss cues from other people signaling discomfort, annoyance, or even affection. At other times, I perceive emotions, be it hatred or attraction, that are not really there. I have learned to bite down on my instincts thanks to instances where I've had my first impression proved wrong. For example, I once thought my art professor hated me deeply. I avoided eye contact and any social interaction as I felt an imaginary loathing emanating from her. Instead, I poured my anxiety into my artwork. I desperately wanted my art professor's approval but I felt that she wanted me to drop her class and disappear from the face of the planet. One night, she passed my drawing of a flower and put a hand to her heart. I thought she was going to say it looked like a very evil flower. Instead she said, "That is incredible! Absolutely beautiful. It touches me." Stunned, I realized that she felt the exact opposite of what I thought she felt. The entire semester I thought she felt my artwork was an extension of myself---thus, she would naturally hate it. After that, I questioned my perceptions entirely. Shortly thereafter, I began to spiral downwards, believing that people thought I was an evil person, that they were going to frame me for horrible crimes, and I was brought to the ER psych unit by my worried mother. I was then diagnosed with schizo-affective disorder and the series of faulty perceptions made sense; my perceptions were skewed.

Rather than slip into a deep haze of self-hatred as some schizophrenics do (as society can abhor a schizophrenic), I began to study the disease by reading everything from the library. I learned to see it not in terms of bad luck but an unfortunate triggering of certain genetically inherited properties. It was not a curse from some cruel God, but a disease of science that is still in the process of being understood by scientists.

I learned about the dopamine hypothesis that states schizophrenia is a disease that results from an excess of the neurotransmitter dopamine. What causes this excess may be genetic, or a combination of genetics and environment, but whatever it is, it is not the result of a wicked heart. Often, schizophrenics are misunderstood.

Just today I got an email from an ex-lover who said that he moved out because his roommate (who happened to be schizophrenic) got drunk, high, and threatened him with a knife. My ex-lover blamed this violent threat on the person's schizophrenia. I think this is ridiculous, as drunk and high people who are not schizophrenic often act out violently. Should I therefore assume that every alcoholic is on the verge of murdering me in cold blood because of his state of intoxication? Despite the fact that drunken rages of violence are super common, I would not. Why, then, would my ex-lover believe that violence is common among schizophrenics? It is this ignorance that is detrimental to all of us in the States. Ignorance means that there is a reluctance to admit to mental illness and this can leave a person incapacitated due to their untreated mental illness.

On one last note, all people are equal with equal rights and opportunities. Remember that next time you encounter somebody who admits to (or exhibits) a mental illness. It is an unfortunate truth that the majority of people who have been through treatment for mental illness have faced blatant discrimination, fear, hatred, blame, and the cruelty that can come from the very people who are employed to look after their well being; mental health practitioners.

I took a psychology of criminal behavior class at my University and the professor said something that resonated deeply with me: "There are two work places that attract highly controlling and domineering personality types seeking employment: prisons and mental hospitals." This was coming from a man who used to work in an asylum for the criminally insane!

In conclusion, please be kind and don't pour salt onto the psychic wounds of the mentally ill. We are all fighting our internal hell in order to smile or say hello. At some point, your life will hit an obstacle, perhaps due to a death in the family, and you will feel the same struggle we can feel on a daily basis.

Thursday, January 5, 2012

Why Paranoia Makes Me Shop Online

I entered the store and a security guard greets me. Not quite a smile, his expression was more like civil, rigid, minimalist politeness. He eyes me up and down. I can feel his X-ray vision entering my purse, my pockets, and scrutinizing my empty hands. He reeks of paranoia, as do all the other store employees who walk down aisles checking in on customers with fake smiles.

Being a paranoid schizo-affective, I am hypersensitive to the paranoid states of others. It's like sensing a kindred spirit, call it Pare-dar. Like a paranoid radar, pare-dar allows me to detect paranoia, fear, and suspicion in others from a distance, without having to interact with them (though a brief interaction allows me to confirm my assertion). During holidays, stores get lots of shop-lifters so they alert their employees to be on the look out.

So I entered the store to find a fog of suspicion inside. My little paranoid antennae went up as well, as I respond to paranoia with paranoia. I grabbed a Diet Coke, a pair of earbuds for my IPOD, dropped these items onto the cashier's area, paid, and ran out the door.

Hence, why I shop online. No paranoid employees asking me how I'm doing while eyeing my purse. No little trail of employees following me down the make-up aisles like spooks from the Cold War era. Just a couple of clicks and a two-day wait, and poof---a package on my doorstep. When you're paranoid, avoiding other people's paranoia is a good way to keep healthy, so from now on I shop online for items like flash drives, books, appliances, and so on.

Just a side note, what's been bugging me lately is that a lot of people don't understand that schizophrenics aren't criminals. There are lots of schizophrenics out there and only some of them are CRIMINALLY insane while the vast majority are just nuts, with no criminal tendencies at all. That's why we have the words "asylum for the criminally insane" versus "psychiatric hospital". In theory, a psychiatric hospital is just that---a hospice (in reality it's like a little behavioral modification unit equipped with Middle Ages era restraints, sadistic employees who secretly detest their wards, and a model of bed rest and group therapy that is as outdated as the stacks of magazines in the group room).  The CRIMINALLY insane usually end up in jails or hard-core state facilities with even more Middle Ages era style techniques.

In case you're wondering, I am the plain version of schizophrenic, not the criminal variety. Still, due to my  delusions of impending torture by secret agents and my fear of assassins, the county workers (well, some of the poorly trained and unscrupulous ones) deemed me as a threat to self and others (code=5150). Does that mean I am a threat to others? No. What it meas is that there are rigid requirements for forced hospitalization and unfortunately, people are willing to lie on my charts in order to get me into a psych ward. No, I'm not being delusional. This has been my experience, the experience of others I was roomed with in psych wards, and it's even been the case for Elyn R. Saks, author and legal expert, who penned "The Center Cannot Hold."

I am now almost done reading Saks' book. I have postponed finishing it because it was so exciting for me to read about her academic successes that I dreaded not having to read the book anymore. Since I am a college student about to apply to my University's graduate programs, Elyn Saks' story means the world to me. She proves that we can achieve while psychotic. We can achieve while on medications. We can achieve, regardless of how disabled we are, and that is gold to me. 

Monday, January 2, 2012

Weight Woes

This April I was 181 pounds---and this was after I'd gone on a vegetarian diet to eliminate all the greasy, saturated meats in my diet. I was probably closer to 190 or 195 at my highest weight. At 5'1 or 5'2, this is not morbidly obese, but it is obese. In case you don't know, there's underweight, normal weight, overweight, obese, and morbidly obese. I knew something had to be done. I was having respiratory problems which made me short of breath while stationary. Walking I was fine but while sitting down I felt I couldn't breathe. This might have been my anxiety condition or it my weight problem, either way, I decided I would deal with the weight.

By July I was 171 pounds. No crash dieting (though I flirted with the idea at my lowest point), just large amounts of vegetables sauteed in olive oil and hot spices, no meat, and a cut back on sugar, pasta, and breads.

At my lowest weight I was 158 this November, down another 13 pounds. I managed this by purchasing a rowing machine with various levels of resistance with my financial aid money and using it as long as I could as often as I could....usually only 20 minutes 4 times a week...plus judo class for 50 minutes 2 times a week since the end of August.

I eat 3 meals a day, no skipping. It was simply that my portion size shrunk while the food I ate became healthier. I have my bad days, but usually I  have a routine where I prepare my vegetables in cumin, coriander, cayenne pepper, and turmeric spices with a regularity that is relaxing for me. As indulgence I will sprinkle some shredded cheese over a cup of vegetables and let it slowly melt into delicious cheesiness. Maybe I'll have a piece of Mexican sweet bread (pan dulce) as a late-night dessert, but for the most part I avoided desserts like some people avoid black widow spiders.

I have to make sure I eat 3 meals a day because I had a period where I did not eat 3 meals a day, I was on a starvation diet and I ate no breakfasts, a salad for lunch, and a measly dinner, drank my weight in sugary soda and sugary coffee to keep me alert at work, and then passed out at night, malnourished and steadily going insane. I lost almost all the weight I'd gained being on medications for schizophrenia, but in my stupid zeal I quit taking the medications and stopped eating the bare minimum requirement for health. When I was inevitably hospitalized for psychosis by my exhausted mother (this time it was secret assassins on television's Sesame Street threatening to kill my entire family), I was 131 pounds, not anywhere near the 112 pounds I was at age 21, but still, I was so damn close! Was it worth it? Hell no! I spent days in the psychiatric facility debating whether I should be thin and psychotic, locked up in psych wards with nobody around to admire my weight loss, or fat and sane, possibly even productive. Hence, why I now have to lose weight!

On the plus side, it was wonderful to give myself permission to eat and enjoy food, despite becoming obese in the process. Where once I had envied my boss's young wife for being rail thin (she worked all day as a waitress in her husband's restaurant and the only thing I ever saw her eat was a salad with cottage cheese on top---a bizarre concoction that I never could get the hang of), I now envy women who are successful in their jobs and happy about their contributions to society. This is an achievement I'm proud of, and though I have to continue to work my way into the normal weight range, I'm on medication, attending University with one semester left until I graduate with my B.A., managing my mental illness, living a life with friends and family, and being productive to society. I never could have accomplished this being unmedicated or starving.

I have a long way to go before I reach my ideal weight---these holidays set me back 5 pounds, back to 164, but I'm determined to accomplish my New Year's goals  of losing weight, exercising 5 times a week, graduating with a decent cumulative GPA in May, budgeting my grant money so I don't wind up penniless by summer time, and raising my self-confidence in my body and my mind. :)

Hopefully, with some patience and ambition, I can accomplish these goals this year.
2011 was a year of painful loss (my cousin by suicide and my grandfather by heart attack), one of scholastic achievement (Dean's List Spring semester), one of unemployment, but a year that I'll be proud of one day in the future as a period of transition from mental patient/pot head to University student.

HAPPY NEW YEAR!!

Friday, December 30, 2011

On Schizophrenia and the Recovery Model of Treatment


My mother is a member of NAMI. NAMI stands for national alliance for the mentally ill. They promote mental health, recovery, reintegration into society, and they also battle stigma and discrimination against the mentally diagnosed. 

I found an article on yahoo's news page about NAMI's current battle to fight stigma. There was an accompanying tale of a man's struggle to find work as a person with schizo-affective disorder. He was told repeatedly that he couldn't work due to his illness. What a shame. Imagine if we had told John Nash he couldn't go to college because of his condition. The world would never have known game theory!



The outlook for mentally ill people used to be bleak. It kind of still is, but there is a movement towards a recovery model that can change the common fate of the current model (current model = disability paychecks and lots of bed rest). The recovery model promotes maintenance of mental health. By educating the mentally ill and their families about their illnesses, there is a greater chance that a relapse can be prevented from happening.

For example, if I start thinking paranoid thoughts (like my friend is really an agent sent to gather intel on me), I can stop this process from becoming a full blown delusion by asking myself what evidence I have of this thought, how can I counter this thought, and whether or not it is logical or cost-effective for the agency to do this against an ordinary citizen like myself. The answer is no, it is not logical or cost-effective and there is no evidence to support this. Now, instead of having a minor relapse, I have isolated a defective cognitive thought and quarantined it. Then I can relay this information to my out-patient care provider and they can assist me in further ways, such as providing verbal reinforcement about this thought being defective, or by upping my dose of psychotropic medication. 

Prior to very recently, this would not have been feasible. A therapist would give up, throw the towel in and possibly even send me to a hospital for in-patient treatment. The common thought was that therapy can't help psychotics, only medication and restraints help psychotics. However, those days are gradually dissolving. We now know there are positive symptoms of schizophrenia (delusions, auditory hallucinations, etc.) and NEGATIVE symptoms (apathy, loss of happy feelings, introverted personality tendencies, inability to socialize, scattered speech, etc.). Medications generally only provide relief from POSITIVE symptoms, though the new drugs on trial may be paving the way to change this. Therapy, coping skills, family interventions, friends, and self-maintenance are the ways to reboot the schizophrenic's cognitive state by treating the NEGATIVE symptoms as well.

What I hate the most about being schizophrenic is that the only media portrayal we have is of first-time psychotics going sociopathic and shooting people. Just because a couple of psychiatrists found 2 mass murderers to be paranoid schizophrenics does not justify labeling all of us as potential killers. First of all, there is no mass murderer gene. Schizophrenia is a complicated disorder that affects the genetic structure of a person's DNA. Some research even suggests it may be a misfire of how our DNA is activated.


Nowhere in the scientific literature does it state that schizophrenia is a killing disease. Even sociopathy isn't defined as a killing disease! Just in case you don't know, sociopathy is the personality disorder (as opposed to genetic disorder that is schizophrenia) that causes people to be narcissistic and apathetic about the feelings of others---extreme sociopaths include Ted Bundy, and lesser sociopaths include that control freak ex-manager of mine who followed me around with a nasty temper. I am not making this up, I took a class from a respected criminal profiler last January and he stated that sociopaths pose much more of a risk than schizophrenics ever will. He then held out his arms at his sides and said "my right hand is a sociopath, my left hand is a schizophrenic, two different hands, get it? They're far apart. There's probably a schizophrenic here in the room and you don't even know it! Raise your hand, where are you?" I pretended to look around for the schizophrenic while refusing to raise my hand (I'm the paranoid sub-type and I was too paranoid to expose myself in a room with 150 strangers. ; /  )But it was good to hear somebody finally dispel the myth that schizophrenics are violent, agitated people who need to be chained to trees and left for the elements. 

We need love! With that thought, I'd like to add that I found an opportunity to establish a NAMI affiliated club within my University. I just need 5 people and the okay from NAMI. I'd like to be part of the solution towards a recovery model for mental health. Cross your fingers and hope for the best for my idea of a NAMI campus club! I sent them an email yesterday, hopefully they'll reply before the new semester starts!

PS I am still reading "The Center Cannot Hold", I'm on page 100-something, and it gets better and better! I strongly recommend Elyn R. Saks as the book to read this month! :)

Thursday, December 29, 2011

An Excellent Book On Schizophrenia by Elyn Saks

I just ordered this book, The Center Cannot Hold by Elyn R. Saks, through amazon dot com and it arrived yesterday. I have read all of 24 pages and I'm hooked. It's the kind of book that gets me so excited I can't sit still. 24 pages into this memoir of psychosis and I had to set it down and take a long walk while listening to industrial techno music. I felt the euphoria of someone who had just found somebody who was like myself.

Yes, 24 pages is all it took to make me endorse a book I barely read. From the opening scene at the Yale Law school library's rooftop to the admission of early drug use to her parents--- that's as far as I got before I realized I was reading a book up there with An Unquiet Mind and Prozac Nation.

I am so excited about this book I felt like promoting it before I even finished it. True, only a few people visit this blog, but to you, the random one person who accidentally stumbled here, I encourage you to purchase this book and give it a read.

Due to the nature of schizophrenia it is difficult to find a writer who can detail her/his illness with clarity and insight, as the illness can rob us sufferers of clarity of thought. Many of the memoirs on schizophrenia are written by the close relatives of people who suffer from the disease. There are some notable exceptions, such as the son of Kurt Vonnegut Jr. who wrote Eden's Express (Mark Vonnegut).

Elyn R. Saks really comes out as a major prose writer, as well as a memoir writer, which makes her writing all the more powerful. At one point, she writes that she felt like an "insect on a pin" while being admitted to a psychiatric facility. This is too true. Sad, but honest and well-written.

Please purchase this book! It is a good way to see that a schizophrenic is just a person with a cognitive disability, someone who can nonetheless achieve goals in life.

Here's a link to the book on amazon dot com.
http://www.amazon.com/Center-Cannot-Hold-Journey-Through